The first of the papers from the Autistic Experiences of Breast Cancer research project has been published!
This paper was from our interview study and explored the lived experience of ten autistic people who have had a diagnosis of breast cancer and treatment in the UK
The paper is published open access and can be found here:
Each work package has now been completed and we are busy writing up academic papers for the studies.
We will share more details soon.
BBC Radio Devon Interview 17/10/2024
Caroline Densley interviewed Dr Char Goodwin for her morning show on BBC Radio Devon. To hear the interview click below.
BBC News Devon 07/10/2024
Article discussing the interview study, part of the wider Autistic Experiences of Breast Cancer research project
My Weekly Interview 28/05/2024
Dr Char Goodwin discusses the importance of hearing directly from autistic people about their experiences of breast cancer.
Healthcare barriers exist for autistic people. When diagnosed with cancer, healthcare barriers can be experienced over and over, at each appointment, each procedure, treatment and interaction with healthcare professionals.
Understanding what the experience of breast cancer diagnosis and treatment is like for autistic people, directly from autistic people, is vital. Without doing this we will be unable to makes changes to cancer care that is beneficial and useful for autistic people.
The Autistic Experiences of Breast Cancer project will be doing just that.
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